01 May 2021
Please Help Yuvaan Ramtekkar Get The World's Costliest Drug!
Yuvaan's Struggle with SMA type1 (Spinal Muscular Atrophy)
Kokan Sanstha is a leading NGO that helps underprivileged children to Promote Education, Health, Women Empowerment, and Medical Support for children suffering from critical illness, Orphanage Support for the holistic development of the children and Old Age Home for senior citizens for their nutrition and medical. Our NGO works intending to help the poor community through various activities.
Case Study: We humbly request you to help Mast Yuvaan, 13 Month old boy history of developmental delay and he is diagnosed case of SMA type I. This a genetic progressive disorder which requires gene therapy. He is advice to take gene therapy namely injection zolgensma to improve his symptoms. This drug can be imported from USA and its cost range from 15-18 crors in Indian rupees.
Family Scenario: Father of YUVAAN is Working in a Company and earns approx INR 27,000/- per month. He is not in a position to bear the heavy cost of the treatment with his average salary. They are unable to afford the medical treatment for their baby boy whom they love so much.
Appeal to helping hearts: We, therefore, sincerely appeal to the Helping Hearts like you to come forward and extend your full support to enable us to treat Mast.Yuvaan.
The approximate cost for the Injection is Rs. 15-18 cr/-. We appeal YOU to save the life of Mast Yuvaan by sending your contribution by Cheque/DD/Online in the name of Kokan Kala Va Shikshan Vikas Sanstha